Whether or not you know what a port-a-cath
is right now, my hope is that these pages will show you how wonderful
they can be, and to inspire you to either a) take your doctor's
advice and get one, or b) ask your doctor why s/he hasn't mentioned
getting one!
A port-a-cath is a device placed in your
chest or arm for the purpose of administering chemo, IVs, or drawing
blood (vascular access system). Some people have catheters such
as a Groshung. Catheters are partially outside of the body, often
with a tube of some sort hanging out. Ports are completely under
the skin. If you have a good surgeon no one will even know its
there. Mine was not visible unless you knew where to look. It
was only 10.1 mm high, and 25.4 mm wide. It weighed 11 g. If
you're worried about another scar, please don't. You can always
have plastic surgery to get rid of a scar, but you can't have
a vein transplant.
There are, of course, risks of infection.
Infections and problems are RARE. Very rare. But many people
who have had infections or other problems have gotten a second
or third port, and would definitely recommend them to others.
Your doctor will be watching you closely, and you know your body.
At the first sign of trouble it will be taken care of. Without
the port you will definitely have problems, if not during chemo,
then later. With it you might have problems. Your doctor can
provide you with a list of the potential problems (found in the
Deltec port-a-cath Instructions for Use pamphlet.)
You should know what they are and consider them as well as the
benefits you are reading about here.
Below you will find my "letter"
written when I had just gotten my port. Other letters from prior
visitors to these pages follow. If you have/had a port and would
like to have a letter posted, pro or con, please e-mail it to
me. If you get one because of what you read here, send me a note
about that as well! Good luck!
I had surgery on March 1, 1996 to have a port-a-cath installed in my chest to have future treatments in and blood removed from. So far so good. After an initial problem with my left arm being really sore from the necessity of having to cut into the chest wall, all is fine. There are some movements that used to be natural that are more difficult now (like scratching my right shoulder!), but all in all not too bad. This will be a part of my body for about 2 years, so I have plenty of time to make adjustments.
I had my first chemo in the port on Friday
March 8th. Not too bad. It hurt more than I expected to put the
needle in, but once it was in and going it wasn't bad at all.
No burning or irritation. No need for heating pads or gel packs.
The second treatment on the 15th was easier, as have subsequent
treatments. It didn't hurt nearly as much to put the needle in,
so we think that the first treatment just had swelling left from
the surgery that caused the extra sensitivity. So, now when I
go in I remember to wear a button shirt as the port needs to be
accessible, the area is numbed and cleaned and a butterfly needle
is inserted in the silicone section of the port (the rest of the
port is titanium...I have a nifty little card to carry that tells
all about it), and away we go! Everything drips directly into
the port which has a tube that goes up into my neck and down to
my heart. I have noticed that I feel dizzy when the stuff drips
this way, but it doesn't hurt so it is better than the alternative.
Everything can be dripped quicker with the port, too, so my appointments
aren't quite as long anymore. That's nice.
After port:
I had my port removed May 19, 1997. I
miss it already. I had to have an IV 6 weeks after my port was
removed. Because my veins have disappeared since chemo, it took
over 30 minutes of trying (twice) and looking before settling,
again, on the inside of my wrist. This hurts a lot
to do. Please do yourself a favor and get a port.
Just my .50 (hey it's MY web page!),
Li
Copyright 1996, 1997. Last updated July 23, 1997.